Kris Aquino diagnosed with rare autoimmune disease

MANILA, Philippines — Multimedia star Kris Aquino shared on social media the results of her recent medical treatment in Singapore.

In very lengthy Instagram posts, Kris shared that her doctor in Singapore diagnosed her with Chronic Spontaneous Urticaria (CSU), “a serious, chronic and distressing skin condition that is difficult to diagnose and manage,” according to Novartis.co.uk data. 

 

 

 

 

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(the infohraphics came from the website of novartis.co.uk) I’m directly quoting my ???????? physician. “The results are consistent with Chronic Spontaneous Urticaria; likely autoimmune in view of the positive thyroid autoantibodies.” Since childhood, i’ve known i was severely allergic to several types of medication. Environmental allergens started triggering what i thought was just allergic rhinitis, sore throat, and skin asthma in my late 20s. i was told during my 2015 medical evaluation to have my thyroid autoantibodies closely monitored. Every year since then my the count continued to rise, and this September they reached a critical level. i’m 100% aware that millions of Filipinos work here & all over the world in the medical field; there’s research online to explain the significance of my disclosure. i do not have the same right to privacy as others because my work is dependent on the public’s patronage & goodwill, that’s why i chose to be upfront rather than subject myself & my family to misinformed speculation. Unless there’s something i can share to raise awareness on how to deal with & treat autoimmune disorders for the many others who suffer from them, this is the last i’d like to post about my condition. This ailment shouldn’t confine or define me, but’s a valid, medically confirmed diagnosis about my physical limitations. There’s a quote i find inspiring “i will show you that surviving can be beautiful.” #laban ????

A post shared by KRIS AQUINO (@krisaquino) on Oct 11, 2018 at 5:52pm PDT

Red hives, itchiness, and deep tissue swelling are among CSU’s symptoms, while its complications include sleep deprivation and depression, according to the data shared by Kris.

“The results are consistent with Chronic Spontaneous Urticaria; likely autoimmune in view of the positive thyroid autoantibodies,” Kris quoted her doctor’s diagnosis.

“My Chronic Spontaneous Urticaria afflicts less than 1% of the world’s population. Most suffer through it for 1-5 years. Some suffer through it for decades- i fall under that category,” Kris shared.

“What happens when you suffer from an autoimmune disease? I researched in healthline.com… The immune system mistakes part of your body — like your joints or skin — as foreign. It releases proteins called autoantibodies that attack healthy cells. Women get autoimmune diseases at a rate of about 2 to 1 compared to men — 6.4 percent of women vs. 2.7 percent of men. Often the disease starts during a woman’s childbearing years (ages 14 to 44).”

 

 

 

 

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This is my story. My urticaria flares started in 2013, but i thought they were allergic reactions & called them hives. They’ve steadily worsened to about 2 bad episodes a month lasting at least 4 to 7 days. I have no food allergies except crab & lobster (based on my ???????? full allergy test)... What happens when you suffer from an autoimmune disease? I researched in healthline.com so i could easily explain it since i have so many doctors who are now friends that i unknowingly use medical terms. The immune system mistakes part of your body — like your joints or skin — as foreign. It releases proteins called autoantibodies that attack healthy cells. Women get autoimmune diseases at a rate of about 2 to 1 compared to men — 6.4 percent of women vs. 2.7 percent of men. Often the disease starts during a woman’s childbearing years (ages 14 to 44). My Chronic Spontaneous Urticaria afflicts less than 1% of the world’s population. Most suffer through it for 1-5 years. Some suffer through it for decades- i fall under that category... i found my doctor here, Dr. Geraldine Zamora through @trishaduncan who had done an @everbilenaofficial @krislifekit webisode w/ me. She introduced me to the head of their Asean Doctors group. He is an allergy, rhueumatoid, and immunology specialist. He’s the 1 we flew to Singapore to consult... Dr. Geraldine has been so patient answering all my concerns & helping explain my diagnosis... i believe everything happens as part of God’s plan for our lives. i have the platforms to raise awareness about this medical challenge... Stress we cannot avoid, but it is a big factor. A healthier food plan with vegetables (except alfalfa sprouts), fruits, fiber rich food, oatmeal, lean cuts of beef (for iron & vitamin D which are depleted), beans (thank God i like garbanzos), and fatty fish are all helpful. And very importantly, she advised to be in bed by 9:30 PM & sleeping soundly at 11 PM. Sorry i’m going over my prescribed bedtime, but i edited this video myself. Thank you to all who messaged me w/ love & prayers... Good night. Yes, i’m starting to SMILE from my heart again.??????????????????????????

A post shared by KRIS AQUINO (@krisaquino) on Oct 11, 2018 at 7:45am PDT

The actress recalled that her urticaria flares started in 2013. “But i thought they were allergic reactions & called them hives. They’ve steadily worsened to about 2 bad episodes a month lasting at least 4 to 7 days. I have no food allergies except crab & lobster (based on my full allergy test).”

Since childhood, Kris said she has known that she was severely allergic to several types of medication. “Environmental allergens started triggering what i thought was just allergic rhinitis, sore throat, and skin asthma in my late 20s. i was told during my 2015 medical evaluation to have my thyroid autoantibodies closely monitored. Every year since then the count continued to rise, and this September they reached a critical level.”

Kris said her health dipped after discovering an alleged “financial abuse” from unnamed business partners.

“I’m sharing our story for you to understand THE PAIN MY FAMILY ENDURED...Ang hirap madiskubreng may malaking perang pinaghirapan kitain na ginastos ng walang pahintulot para sa luho ng taong pinagkatiwalaan mo- kahit na milyones na ang kinita nya galing sa yo. Bumagsak po ang katawan ko, in 1 month i lost 15 pounds. i was SCARED, our Mom had unexplained weight loss before her cancer diagnosis. That’s why i had my series of blood tests. This is our TRUTH.”

Her children, said Kris, feared that she might have gotten lupus, the autoimmune disease that struck Hollywood stars like Selena Gomez, who recently had a kidney transplant as a complication of the disease.

“Kuya was anxious & confused. Bimb knew Selena’s journey. It was heartbreaking to see my 11 year old crying inconsolable tears and pleading, ‘please don’t leave me mama.’ Bimb even offered me his kidney. Ang pera magsipag ako, kikitain ulit. PERO HINDI PO MABIBILI ANG EXTENSION SA BUHAY. Kaya nagmadali kaming lumipad ng Singapore for me to get the most thorough medical evaluation.”

Having CSU, according to Kris, makes her dependent on high-powered medicines for the rest of her life. Besides these, she has also began maintenance medication to control her hypertension diagnosed in 2015, and has been undergoing treatment for severe migraine attacks.

“I am now, and for the rest of my existence will be, on high dosage antihistamines and having the EpiPen will always be crucial. Severe allergies are life threatening because of anaphylactic shock,” she bared.

Her prayer, she said, is to be able to make it for at least 10 more years for her sons.

“My prayer is simple, to raise my youngest son to become a responsible adult who’ll care for his kuya, then God already blessed me more than i deserve. #laban (October 11, 1954, 64 years ago my mom & dad got married. Heaven timed i’d get my medical answers now for me to remember BEING BRAVE is part of my DNA.)”

 

 

 

 

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You prayed for us regardless of not knowing me personally. i waited for my Singaporean doctor to send my final diagnosis. Now i’m ready to open my heart... I’m sharing our story for you to understand THE PAIN MY FAMILY ENDURED...Ang hirap madiskubreng may malaking perang pinaghirapan kitain na ginastos ng walang pahintulot para sa luho ng taong pinagkatiwalaan mo- kahit na milyones na ang kinita nya galing sa yo. Bumagsak po ang katawan ko, in 1 month i lost 15 pounds. i was SCARED, our Mom had unexplained weight loss before her cancer diagnosis. That’s why i had my series of blood tests. This is our TRUTH. My initial diagnosis indicated an autoimmune disease. Selena Gomez, Gigi Hadid, and Wendy Williams all raised my awareness. To be specific, we were afraid it was lupus. Kuya was anxious & confused. Bimb knew Selena’s journey. It was heartbreaking to see my 11 year old crying inconsolable tears and pleading, “please don’t leave me mama.” Bimb even offered me his kidney. Ang pera magsipag ako, kikitain ulit. PERO HINDI PO MABIBILI ANG EXTENSION SA BUHAY. Kaya nagmadali kaming lumipad ng Singapore for me to get the most thorough medical evaluation. To be specific i now know i have Chronic Spontaneous Urticaria, and yes, mine is an autoimmune disease. I am now, and for the rest of my existence will be, on high dosage antihistamines and having the EpiPen will always be crucial. Severe allergies are life threatening because of anaphylactic shock. I disclosed that i started maintenance medication to control my hypertension in 2015; i also have ongoing treatment for severe migraines. You know my life’s journey. Thank you for being with me through the tears and victories. I AM PROOF, LOVE MAKES US STRONG. Because we know WHY WE ARE FIGHTING...for me it’s for my health because 2 people i love more than life itself still need me for at least 10 more years. My prayer is simple, to raise my youngest son to become a responsible adult who’ll care for his kuya, then God already blessed me more than i deserve. #laban (October 11, 1954, 64 years ago my mom & dad got married. Heaven timed i’d get my medical answers now for me to remember BEING BRAVE is part of my DNA.)????

A post shared by KRIS AQUINO (@krisaquino) on Oct 10, 2018 at 8:39am PDT